Last week, after being told repeatedly that noone can understand Joshua's Chinese, Cantonese or English (he can understand!), we had his speech evaluated. He scored moderately severe :-(. BUT his prognosis is great. :-) And so he had his very first Speech appt today with Robert's old ST! She said Joshua is not only quite imitative, but she thinks he's extremely bright! When she tried to get him to say "port" and showed him a boat going into a port, he pointed to his cheek with the Port Wine Stain and said "port". Hmmm... he's been listening in on our conversations!
I sure pray his future is as bright as his promise is now :-).
Because... this kiddo does not just have "mild" Sturge-Weber like I was hoping and expecting :-(. The doc has yet to finish his report rating it and sending all the info to us in "English" but the radiologist noted quite a few abnormalities in the brain and neck. One of the freakiest to me at the moment is that Joshua has no left jugular vein?! God is His Perfect Timing connected me with a Sturge-Weber support group and delayed our receiving this MRI report til today. Guess what the group has been talking about the last 2 days?? Yep... missing jugular veins. Wow.
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We will be continuing to pray for you guys!
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