Josh has started the 3rd grade, and is loving school most of the time :-). Josh's pull-outs for reading and writing are no longer happening... the special ed teacher goes TO the classroom, along with other teachers and aides to work with all of the various reading levels. And the greater inclusion seems to be agreeing with him :-). He's such a little over-acheiver!
Medically, Josh has been doing fairly well. He currently has a 3/4" strange growth on his neck that was finally ID'd as a Pyogenic Granuloma... a hemangioma of sorts. Wow, did it ever grow quickly! We may yet have to have that one surgically removed.
His KTS arm, hand and shoulder are doing soooo much better with a "Josh's Salve" that I make myself... from coconut oil, shear butter, olive oil and beeswax... and 5 essential oils in it. He no longer needs any compression wrap... yahoo! :-)
Josh's overgrown jaw is giving his face renewed issues, now that the permanent teeth are all in in the top 1/4 of his jaw :-(. The 2014 annual Vascular Birthmarks Conference will be in NYC on 10/11, and we plan to meet Dr. Stavros Tombris there, from Athens, Greece, and see what he thinks we need to do for next steps. Hope it's well worth the super long and stressful journey! :-)
Monday, October 6, 2014
Sunday, April 27, 2014
Home 4.5 years
The posts are getting farther and farther apart. Mostly because Josh is doing rather well :-). And because of the seemingly escalating busy-ness of our lives!
Medically... Josh is doing SO much better! And I credit much of that to our being introduced to therapeutic level essential oils. With them... we prevent most bouts of strep (only one case in 16 months). We keep the swelling down on his KTS arm even better than any compression wrap did AND it "erases", temporarily most likely, most of the hundreds of vericose veins on Josh's arm!! Wounds and bruises heal easily and super fast with Helichrysum. Pain levels seem to be down, as well as with the baby aspirin trials. with Frankincense and Balance. An added benefit of having an essential oil alternative to aspirin is... no more nose bleeds! :-)
Josh grew 1.5 inches just in the first 6 weeks of 2014 alone! He now weighs 54#.
Josh did extensive visual testing in 12/2013. His vision in his left. affected eye, cuts on and off :-(. Josh got some seriously poor scores in visual processing :-(. But now that better accommodations are being made, he's really taking off in reading :-).
He's now a Cub Scout, and has been enjoying the classes/meetings and getting to see some other boys outside of class.
Math and technology are Josh's best subjects in 2nd grade. It's fun to watch him grow, and speculate as to which directions life will take him in the future :-).
Medically... Josh is doing SO much better! And I credit much of that to our being introduced to therapeutic level essential oils. With them... we prevent most bouts of strep (only one case in 16 months). We keep the swelling down on his KTS arm even better than any compression wrap did AND it "erases", temporarily most likely, most of the hundreds of vericose veins on Josh's arm!! Wounds and bruises heal easily and super fast with Helichrysum. Pain levels seem to be down, as well as with the baby aspirin trials. with Frankincense and Balance. An added benefit of having an essential oil alternative to aspirin is... no more nose bleeds! :-)
Josh grew 1.5 inches just in the first 6 weeks of 2014 alone! He now weighs 54#.
Josh did extensive visual testing in 12/2013. His vision in his left. affected eye, cuts on and off :-(. Josh got some seriously poor scores in visual processing :-(. But now that better accommodations are being made, he's really taking off in reading :-).
He's now a Cub Scout, and has been enjoying the classes/meetings and getting to see some other boys outside of class.
Math and technology are Josh's best subjects in 2nd grade. It's fun to watch him grow, and speculate as to which directions life will take him in the future :-).
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